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November 23, 2014
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Four weeks till torticollis’ turn

I’m sitting here at work for the second day in a row with tears trickling down my face. I was fine with this a few months ago. Sure, at first I was heartbroken when I found out Lily would need surgery for torticollis and she would need to wear a halo system for six months up to one year. But after a couple of months, I got used to the idea. And now with the pre-surgery date approaching in two weeks and the surgery in four weeks, I’m regressing to the moment I heard the news.

I’m so scared for what Lily has to experience. She freaks out when I trim her nails. In fact, last time I gave her an at-home manicure I thought passersby were going to call child protection. The girl does not like to be messed with. Maybe that’s a sign of how strong-minded she will be as an adult. I like to think so.

I’m dealing with the stress by filling the ears of family, friends and sometimes, coworkers (you know who you are, and thank you!) with my concerns. I’m a communicator. It’s not in my nature to deal with things without thoroughly talking, or in this case, writing, about them.

See, that I’ve shared this with you I already feel better. My eyes are dry, and I’m ready for my 2 o’clock meeting. Thanks for the therapy.

 

Our newest guest blogger, Cindy, wrote an article in our October issue about her daughter's victories and struggles with Torticollis. Come back and read more from Cindy in the next two weeks...

Cindy's Bio: I am a wife, mother, writer, photographer, part-time instructor and graduate student. When I have free time, I like to play “Annie” with Lily or cook delicious, you-never-miss-the-wheat, gluten-free meals. I also like to sing and tinker with my acoustic guitar.

Old to new | New to old
Oct 17, 2011 11:04 am
 Posted by  ARodgers

Thank you for sharing your experiences!

Oct 17, 2011 03:03 pm
 Posted by  Jennifer D.

Just read your article in Tulsa Kids this month. Wow. What a fantastic set of parents Lily has! She is a lucky little girl! I have heard of torticullis and seen it often in my job as a speech therapist. In the cases I have seen, the kids have all gotten physical therapy but I don't know the outcome since they weren't on my caseload. My grandpa gets botox injections for a tremor that he has. I was surprised when that was prescribed but it works. Still I would be extremely hesitant to give it to a child. It sounds like you all have done your research and laid out the best path for your daughter. Hang in there!!

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